International Epidermolysis Bullosa Awareness Week (23-29 October 2017)

The last week of October is always spent in extra effort to raise awareness of our “Butterfly Children” members.

This year was no different. We have organised several activities and events, and you can participate in some of them too.


We have introduced a new product: PoklonK’o, framed cards with 3D butterflies. You can take a look and buy them on our Facebook page, PoklonK’o charity shop.
Miss Croatia 2017, Tea Mlinarić, has launched a crowdfunding campaign on the platform Čini pravu stvar. The campaign will be active until the 18th November and, by donating, you can contribute to it.

24.10.2017 DEBRA centre, 6 p.m.

A meeting with a team of specialists regarding the writing of a book on epidermolysis bullosa.

25.10.2017 Kaptol Boutique Cinema & Bar, 8 p.m.

Everyone is invited to a get-together with the Miss Croatia beauty pageant finalists. The patisserie Miss Delice will provide profiteroles, and the Gelato Sisters and DJ D-GREE will take care of the music, so there’s sure to be a great atmosphere.

28.10.2017 DEBRA centre, 11 p.m.

A get-together with our members and their families with a lecture by prof. Marina Grubić: How can parents help their children with the psychological adjustment to their condition. After the lecture, a visit to the Museum of Illusions is organised.

We would also like to take the opportunity to express our gratitude to all our partners and sponsors, without whom we would not have been able to organise the Awareness Week:

  • Miss Croatia Board of Directors
  • Kutjevo Plc.
  • Kaptol Boutique Cinema & Bar
  • the Museum of Illusions
  • Miss Delice
  • Dukat
  • Kanpak
  • Rezolucija
  • Iggy Popović
  • Ivana Dobrovoljec (Holly Style)
  • Gelato Sisters

…and to our valuable volunteers!

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