DEBRA, Society of Bullous Epidermolysis

DEBRA

The company of bullous epidermolysis has been established with the aim of interconnecting and organizing help and support for patients with rare diseases and their families.

BULLOUS EPIDERMOLYSIS

Hereditary bullous epidermolysis is a group of diseases characterized by strong skin sensitivity, and in some patients and mucous membranes,
with the formation of bladder and wound.
Depending on the shape of the wounded whole without or with scarring. In cases of scarring, scarring occurs, most often the fingers on the hands and feet, and the lower mobility of the individual joints.
BECOME A SUPPORTING MEMBER
Your membership supports our vision: A society without prejudice in which the quality of life of 'butterfly children'
By becoming a member, you are filling out the aforementioned gateway that does not bind you, but lets you track our activities.
By becoming a member, you become a member of the membership fee of 120.00,
which directly adds to the achievement of our goals.

NEWS

29. May 2018.

Project “Njegujmo život” by the Miss World Croatia Board of Directors collected 6400 kn for DEBRA

We are excited to share that the Board of Directors of Miss World Croatia dedicated this year’s humanitarian project to DEBRA and our “Butterfly Children” members. […]
29. May 2018.

International Epidermolysis Bullosa Awareness Week (23-29 October 2017)

The last week of October is always spent in extra effort to raise awareness of our “Butterfly Children” members. This year was no different. We have […]
29. May 2018.

We wish you a Merry Christmas and a Happy New Year 2018.

We wish you a Merry Christmas and a Happy New Year 2018. Debra team.

POKLONK'O SOCIAL ENTERPRISE

Debra founded its own social enterprise Debra-djeca leptiri j.d.o.o. with the aim of ensuring a stable and undisturbed work of the Association, which does not depend solely on the amount of donations from public tenders. This is to ensure uninterrupted customer service, which will result in an increase in the quality of their lives. We will populate handmade in Croatia and enable our citizens to make purchases at all times, not just during short-term humanitarian actions.