DEBRA, Society of Bullous Epidermolysis

DEBRA

The company of bullous epidermolysis has been established with the aim of interconnecting and organizing help and support for patients with rare diseases and their families.

BULLOUS EPIDERMOLYSIS

Hereditary bullous epidermolysis is a group of diseases characterized by strong skin sensitivity, and in some patients and mucous membranes,
with the formation of bladder and wound.
Depending on the shape of the wounded whole without or with scarring. In cases of scarring, scarring occurs, most often the fingers on the hands and feet, and the lower mobility of the individual joints.
BECOME A SUPPORTING MEMBER
Your membership supports our vision: A society without prejudice in which the quality of life of 'butterfly children'
By becoming a member, you are filling out the aforementioned gateway that does not bind you, but lets you track our activities.
By becoming a member, you become a member of the membership fee of 120.00,
which directly adds to the achievement of our goals.

NEWS

10. March 2021.

Occupational therapy with rare diseases, in case with epidermolysis bullosa

29. May 2018.

300 humanitarian kilometres by bicycle for “Butterfly Children”

A group of four friends launched a fundraiser for Debra via the crowdfunding platform “Čini pravu stvar” and managed to raise 12,700 kn for the accommodation […]
29. May 2018.

We thank Tifon for their donation to the DEBRA group!

Tifon has again decided to support DEBRA’s work, a group of epidermolysis bullosa patients as it has many years before. We would like to take the […]