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    • Epidermolysis bullosa
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    • Donors and sponsors 2011
    • Donors and sponsors 2010
    • Donors and sponsors 2009
    • Donors and sponsors 2008
  • PoklonK’o Shop
  • Hrvatski
  • Get involved
    • Become a supporting member
    • Become a Volunteer
    • One shirt, valuable donation
    • Donate
  • Donators
    • Donors and sponsors 2018
    • Donors and sponsors 2017
    • Donors and sponsors 2016
    • Donors and sponsors 2015
    • Donors and sponsors 2014
    • Donors and sponsors 2013
    • Donors and sponsors 2012
    • Donors and sponsors 2011
    • Donors and sponsors 2010
    • Donors and sponsors 2009
    • Donors and sponsors 2008
  • PoklonK’o Shop
  • Hrvatski

Download the instructions by clicking the link

Parent Guidelines

Handbook on achieving the rights of children with bullous epidermolysis
Information on hereditary bullous epidermolysis
Initial Instructions for Parents

Instructions for healthcare professionals

Instructions for anaesthesiologists for anesthesiologic treatment
Instructions for nurses
Instructions for physiotherapists

DEBRA International Congress (Zagreb, 2016.):


Report from DEBRA International Congress (ENG)
ERN-Skin, European Reference Network for Rare and Undiagnosed Skin Diseases (Presentation, ENG)
About DEBRA Russia (presentation, ENG)
Communication Skills (presentation, ENG)
Recipe book (ENG)
The role of social work The Croatian social welfare system in relation to the needs of persons with rare diseases (presentation, ENG)
The quality of life of patients with epidermolysis bullosa (presentation, ENG)
Amicus trials - Clinical development of SD101 in the treatment of bullous epidermolysis (presentation, ENG)
DEBRA International: cooperation and fundraising (presentation, ENG)
The role of inflammation in bullous epidermolysis: implications for new therapeutic approaches (presentation, ENG)
History of bullous epidermolysis (presentation, ENG)
EB without borders (presentation, ENG)
Cancer and bullous epidermolysis: Does our research lead us closer to treatment? (presentation, ENG)

DEBRA

Society for epidermolysis bullosa patients
Prilaz Gjure Deželića 30 (courtyard building)
10000 Zagreb
OIB 91071732711

Zagrebačka banka
IBAN: HR6723600001101956800
SWIFT: ZABAHR2X

Hrvatska poštanska banka
IBAN: HR03 23900011100984252
SWIFT: HPB2HR2X

CONTACT

Telephone number: + 385 1 4555 200
Fax: + 385 1 4555 199
E-mail: info@debra-croatia.com

USEFUL LINKS

EURODIS-Rare Diseases Europe
www.eurordis.org
DEBRA International
www.debra-international.org
Croatian Association for Rare Diseases
www.rijetke-bolesti.hr

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